Parkinson No Limit

June 14, 2022 was an exciting and important day for our Association.

On this day, the VIII Affective Effective Awards Forum ceremony took place in Madrid, organized by the pharmaceutical company Janssen (Johnson & Johnson) in collaboration with Cátedras en Red.

“The AE Model (Affective Effective Model) is a way of caring for and treating the patient as a person, based on scientific evidence, incorporating the dimension of dignity and humanity, establishing care based on trust and empathy, and contributing to their wellbeing and the best possible health outcomes.”

“The Affective Effective Awards Forum was created as a space for meeting and exchange, with the aim of promoting and continuously improving the AE Model.”

“The competition promoted by the AE Awards Forum recognizes new patient-centered initiatives and helps raise awareness of the work carried out by healthcare professionals across different fields, work that does not always receive the visibility it deserves despite its high quality.”

Dolores Navarro, President of the AE Awards Forum Jury.

The awarded projects represent “a transformation of healthcare that must be human, innovative and sustainable, capable of successfully addressing global challenges, including the 17 Sustainable Development Goals of the 2030 Agenda, promoting a balance between social, economic and environmental sustainability.” Luis Díaz-Rubio, General Manager of Janssen Iberia.

This year, 652 projects carried out in Spain in 2021 were submitted for selection.

Of these, 410 were accepted for evaluation by the jury, led by Dolores Navarro, Director of Patient Participation and Empowerment, an expert in maternal and child public health, planning, evaluation, participation and patient rights.

The Affective Effective Awards Forum selected us as finalists in the category “Awareness, prevention and/or intervention initiatives carried out by patient associations and NGOs in the healthcare sector”, granting us significant recognition both nationally and internationally for the work carried out in 2021, particularly for the project presented: Viva la Vida.

110 projects were included in this category, and the jury selected three finalists:

  • Spanish Cystic Fibrosis Federation
  • Spanish Association Against Cancer
  • Fuerte es la Vida Parkinson No Limits Association

CATEGORY 1
Award for “Best Awareness, Prevention and/or Intervention Initiative” developed by patient associations and NGOs in the healthcare sector

Our project, carried out within our therapeutic and wellness holiday program in Fuerteventura, was designed so that people with Parkinson’s and their families from all over the world could experience not just a holiday, but a holistic experience immersed in nature, in total and genuine synergy with it, together with me and wonderful colleagues.

Our team offers a wide range of therapeutic, complementary and wellness activities, based on a holistic and transdisciplinary approach, supervised by a psychomotricist and a neurologist, according to the Parkinson No Limits Method.

People with Parkinson’s and their families are the true protagonists: supporting and enhancing their health potential and quality of life is the foundation of our mission.

The awarded project, Viva la Vida, was carried out in 2021 and included families from: Norway, Germany, Spain, Italy, Georgia, Florida and Israel.

Psychomotricist Francesca De Bartolomeis, coordinator of the Association’s consultants, led all the proposed activities, sharing every experience with the participants and supporting their involvement not only from a motor perspective, but also emotionally and psychologically.

Specifically, all activities within the Viva la Vida project shared the same therapeutic setting: the Ocean of Fuerteventura and its inhabitants (fish, cetaceans, seagulls and other birds).

In this unique and extraordinary therapeutic environment, participants experienced three innovative complementary therapies introduced by us in the Parkinson’s field: Art Therapy in Water, Surf and Ocean’s Emotions Experience.

The biggest THANK YOU goes to those who got involved and created their Wave of Change with us, including Cathy, Peter, Morten, Rune, Rick, Alejandro, Anat, Adass, Gitte, Alex, Daniella…

And a special thanks to the man who gave life to our association, the Parkinson No Limits Method and all our projects:

Romolo De Bartolomeis, a great man who, through his immense simplicity—built on love and respect for Family, Nature and Life—took ownership of his life and, despite Parkinson’s, and in part thanks to it, made it shine.

Today, this radiant light continues to guide us in the daily implementation of everything we lived and learned alongside him, so we can share it with others and, hand in hand, face this wonderful journey that is Life itself.

Long live life, always!

All the winners of the 8th edition of the Affective Effective Awards Forum